ME/CFS/LYME DISEASE AWARENESS

Wednesday 12 May 2010

ME/CFS/LYME DISEASE AWARENESS

There have been some excellent posts I have read from the internet on ME/CFS/Lyme Disease awareness but the one that really caught my attention was that posted by Laurel from Dreams at Stake. I hope you will take time to read her post here.

Thank you Laurel for all the effort and precious energy you spend in raising awareness of these truly awful illnesses.

I was one of the few to be diagnosed with Lyme Disease after 4 years of being diagnosed with Fibromyalgia, then ME/CFS, Arthritis and Muscle Weakness and then Polymyalgia Rheumatica.

I was one of the lucky to be treated on long term antibiotics and recover from debilitating and painful symptoms of Arthritis and Muscle Weakness but also some Peripheral Neuropathies.

Coincidentally today happens to be the bimonthly meeting of patients local to me in Guildford Surrey. Although we don't all get to the meeting there must be about 20 people I am in touch with all with Chronic Lyme Disease, many previously diagnosed with ME/CFS. So much for our HPA saying Lyme Disease is so rare and without a doubt there will be many more that I am not aware of or they are not aware their symptoms could be as a result of Lyme Disease.

If every person with a diagnosis of ME/CFS or Lyme Disease could spare just a small amount of money to donate to the Whittemore Peterson Institute it could make a differnece in supporting their work in moving forward with research on XMRV whilst our governments remain in denial.
Links to donate here.

2 comments:

Laurel12 May 2010 at 12:54
Thanks for linking to my blog, Joanne. I"m off to make a donation to the WPI now. :)
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Joanne13 May 2010 at 14:42
Thank you Laurel, you reminded me to donate to WPI.
I then read Hilary Johnson's blog

http://oslersweb.com/blog.htm?post=700212

and was so pleased I had donated even if it was only a small amount.

I have decided that if ME/CFS is Tuskegee II then Lyme Disease must be Tuskegee III
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Lyme Life written in 2009

I started suffering with arthritis in mainly my large joints especially my knees 6 years ago. The symptoms varied and I remember saying that every joint was affected except my elbows to one doctor. I was told it would be hormonal and to take the usual supplements cod liver oil or glucosamine ( I would certainly recommend buying shares in the companies producing these supplements) They had no noticeable affect.

All my symptoms deteriorated significantly over a few weeks,4 years ago. Hips shoulders and knees being the worst and I started with muscle weakness in upper arms and upper legs. I had difficulty standing and walking across a room. I was unable to walk upstairs and my husband was making plans to convert to a downstairs bedroom. I had seen 5 doctors and 3 Rheumatologists and put on steroids for Poly Myalgia Rheumatica diagnosis. I had been diagnosed with Fibromyalgia and ME/CFS.

I have X rays and scans showing signs of osteoarthritis and Rheumatoid arthritis. ( later note.- the X rays done some years into treatment showed my hands completely normal no signs of inflammation or RA confirming how they felt - normal) I have been retired early from the Civil Service having lost my job not to mention my earning potential. My illness seemed to progress through my body not affecting the same joints left to right at the same time. I had bursitis in left hip, right hip, left elbow. I had synovial thickening in both wrists. At that time I could not lift and hold a magazine so lifting a kettle I could only do if a third full and with two hands. Each joint in my hands fingers feet and toes were affected. I had swallowing difficulties and many other symptoms. None of this describes the endless and awful pain whenever I moved or the tiredness but inability to get quality sleep.

Two years ago my GP gave me Amoxicilin for a sinus/throat/chest infection. All my arthritis symptoms improved. The course ended the symptoms deteriorated I started a second course the symptoms improved. The improvement was more significant than when I had started taking steroids. This led my GP to suspect Lyme Disease. I laughed because we do not travel abroad but she said they had had other cases in the surgery in the early stages of tick bite and Erythma Migrans rash. She said but you have not had a bite. I said oh yes I have I had two on my ankles with rashes, March 05 this was confirmed on her computer when I had seen a locum doctor. My worst symptoms were waking up feeling rigid and having to painfully flex every joint in my body before struggling to get up. The only other time I had experienced this was in May 2003 during a flu like illness like no other I had ever experienced. At that time I had a bite and similar rash on my right foot which lasted like the other rashes about four weeks. I had also consulted the surgery and it was dismissed as a virus. I walked our dog daily in the woods adjacent to our house where the deer roam, prime tick area. Thus started my very lengthy search about Lyme Disease leading me through Lyme Disease Action to a doctor who specialises in this illness. He confirmed my GP's suspicions. I never had a positive blood test but then they are antigen tests and there is much research that shows they are unreliable. In my case the year of steroids and many weeks antibiotics could have affected the results. So with a clinical diagnosis and following ILADS International Lyme and Associated Disease Society guidelines I continued on antibiotics for two years. Both my doctors continued to treat me despite of Health Protection Agency advising against long term antibiotics. I am now nearly 100% recovered I have no pain or muscle weakness. I can walk upstairs something I could not do for three and a half years. I can garden do house work and live a normal life. I still need to pace myself and with only a few months to 60 will not be looking to return to work. Life is such a joy. Sadly there is much controversy about Lyme Disease and doctors in UK are taught that it is so rare. Well where I live in Guildford I have been in contact with a dozen other people with it so perhaps not so rare as HPA would like us to believe. I am in touch with nearly 2000 other patients through a chat line Eurolyme most had been misdiagnosed with several other illnesses. Look at UK charity Lyme Disease Action if you want to read more about this illness. There are many MP's taking an interest in the problems surrounding diagnosis and treatment see above charity links into a recent meeting at the House of Commons.

Thank goodness there are some thinking doctors around who have courageously treated me against opposition and I have made such a miraculous recovery albeit rather a lengthy one. One day there will be many more people who are helped with their chronic illnesses when IDSA starts taking note of what our courageous LLMD’s are doing following ILADS Guidelines.

ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica, Arthritis, Bell’s Palsy, MS,MN, ALS, Parkinson’s, Alzheimer’s, Heart Block, Stroke, Psychiatric, gastric problems the list is endless. Not all suffering from Lyme Borrelia but how many are even properly assessed for it.

UPDATE

UPDATE 10 January 2012