Sunday 9 May 2010

THE CHALLENGES OF LYME DISEASE: EMERGING RESEARCH-PEDIATRIC CARE

If you click on the above you will be able to read the details.



What an impressive line up of Doctors, Researchers and Advocates.



The meeting was organised for yesterday by Eva Sapi at New Haven University



This is the New Haven Lyme research page here



Dr. Eva Sapi, a professor of cellular and molecular biology has Lyme Disease, and is researching it too.



Because of the dedication of all these people and so many more, patients like myself have been helped to get their health back.



Sadly main stream medicine is way behind on the developments of this emerging disease and so if you have symptoms that could be attributed to Lyme Disease you need to do your own investigations before discussing with your doctors.



The symptoms of Lyme Disease are many, mine were mainly Arthritis, Muscle weakness, Fatigue, inflammation, Bursitis diagnosed with ME/CFS, Fibromyalgia, Polymyalgia Rheumatica and finally Lyme disease and on long term antibiotics, not recognised by main stream medicine for Lyme Disease I have my health and my life back.



Many of the patients I am in touch with on Eurolyme a chat line have neurological symptoms and some have been diagnosed with MS. The worst of my symptoms was Dysphagia, swallowing difficulties and I did have some Peripheral Neuropathies all resolved on antibiotics.

So a big thank you to all these dedicated Lyme Warriors, hopefully the presentations will be available on DVD so that many more Doctors can be educated into helping the thousands more patients who are given symptomatic medication rather than medication fighting the cause of their illness.

2 comments:

  1. Apparently there is a CD of the conference.
    Here are the contact details, costs would probably be more then $10 to the UK though.

    For info on how to get the CD:
    Send $10.00 (which includes shipping)payable to the University of New Haven to:

    Eva Sapi Ph.D.
    Associate Professor and Research Scholar
    Director of Lyme Disease Research
    Department of Biology and Environmental Sciences
    University of New Haven, Dodds Hall #314
    300 Boston Post Road West Haven, CT 06516

    ReplyDelete
  2. Very many thanks I think that is a definite must and may even get my doctor to have a look at it, nothing ventured nothing gained. Especially as there are more patients now being treated at my surgery so one has to wonder how many more there could be.

    ReplyDelete