Friday 14 May 2010

AWARENESS OF THE LYME DEBATE

Minnesota Lyme activist Dr. Betty Malone says it's not enough for the public to be aware of Lyme disease, they must also be aware of the Lyme debate. "Much of what is proclaimed as 'truth' in Lyme disease is based on insufficient evidence. There simply are not enough properly performed studies to establish any single approach to the illness as scientifically correct."
http://www.lymedisease.org/news/lyme_disease_views/431.html

Learn the truth about Lyme disease
by Dr. Betty Maloney, Lyme disease education advocate
Published in the Press (MN newspaper)
Thursday, May 13, 2010 2:45 PM CDT

May is Lyme disease awareness month and although the Press has carried articles, commentaries and letters on Lyme disease, many in this community need to hear more about the illness. But first, we need to talk about truth.

Much of what is proclaimed as “truth” in Lyme disease is based on insufficient evidence. There simply are not enough properly performed studies to establish any single approach to the illness as scientifically correct. This is especially true when it comes to the issue of chronic Lyme disease. How did the prevailing IDSA view, that Lyme is easy to diagnose and cure, come to be ingrained? Here Lenin was right, repetition won out.

To read the whole article in the press click here

There are other posts which give links to responses to the IDSA findings here

here

and here

Knowledge and awareness of the Lyme Debate give us information to be our own best advocates when dealing with our doctors. Without that knowledge I am in no doubt that I would still be suffering with Chronic Arthritis, Muscle Weakness, Dysphagia and some neurological symptoms. I had been diagnosed with Fibromyalgia, then ME/CFS, Arthritis, Musculoskeletal Disease, Polymyalgia Rheumatica and then finally Lyme Disease. Thank goodness I was treated on long term antibiotics and have recovered my health and life.

Having been so ill and having recovered so significantly is it any wonder I try and raise awareness in any way I can.

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