Friday, 21 January 2011


Thanks to Andrea Pring for raising awareness of the struggle for patients with ME/CFS and the desire for the true science to come to light in order to help the patients.

My own history of different diagnosis fibromyalgia, ME/CFS, Arthritis, Muscle weakness, Musculoskeletal Disease, Polymyalgia Rheumatica, as my symptoms deteriorated over 4 years is documented in the right hand column of my blog. Eventually a chance course of antibiotics significantly improved my symptoms and led my GP to suspect Lyme disease.

After many many months of antibiotics I am nearly 100% improved.

What has appalled me the most is the way these diseases and others are marginalised by our medical bodies, when they have been aware for more than 30 years much of the extent of the damage and causes that the illnesses do, but choose to ignore and allow patients to be blamed for their poor health.

How many of the illnesses such as Autism, Alzheimer's, Multiple Sclerosis, Parkinson's, Rheumatoid Arthritis, etc will be found to be as a result of pathogens possibly unknown but some no doubt already known but ignored.

Currently treatments are palliative, if any at all, or suppression of what is assumed, not known, to be an auto immune dysfunction.

I will not post any more of my own thoughts or opinions here on this post but anyone interested can scroll back through this blog at the many posts with links to fascinating research, that if nothing else exposes so many attitudes in medicine for what they are attitudes and opinions but not always based on sound evidence and certainly not the Evidence based Guidelines the general public has so much faith in.

We haven't heard the last of XMRV-ME/CFS-LYME DISEASE


  1. Thank you so much for your thoughtful and well-written post. How wonderful that you are feeling so much better!

  2. Thanks for sharing, Joanne! I'm so happy to hear that antibiotics have helped you so much! :)

    Hugs from Norway

  3. Thanks for writing about this Joanne, your blog is brilliant.

    I would urge people to try and donate money to the Whittemore Petersen Institute where Dr Judy Mikovits and her team are doing the ground-breaking research. Why our own government's health research scientists are so poor at finding out what's going on, and warning the public about vector-borne illnesses such as Lyme and Q fever, I don't know, but it's essential that we show support for those scientists who do have the patients' best interests at heart.

    best wishes,

  4. Thank you , I have passed from doctor to doctor with symptoms that you have suffered , stll no further on i will be having last test Pituatry test !! its all exausting with no help from GPS /docs !!

  5. Thanks everyone for your comments good luck sultan60 with finding the cause of your health problems.

    Densie yes I quite agree about sending donations to Whittemore Peterson Institute they are one of the few places that are really pushing forward to try and get to the bottom of theses health problems in the field of ME/CFS but actually finding it has a much wider impact on human illness ie neurological illnesses, than they ever expected.

    I was in a hurry to do this post but elsewhere in my blog I have posted about donating to WPI.

  6. If the virus turns out to be the cause, the WPI scientists deserve the Nobel Prize.