HEALTHY EATING

Tuesday 16 February 2010

HEALTHY EATING

During my extensive reading about Lyme Disease and ME/CFS I have often heard mention of Dr Sarah Myhill and have occasionally looked at her site but only briefly.

I am well aware that attention to diet is important particularly when suffering with Lyme Disease and or ME/CFS and have read Dr J J Burrascano Guidelines many times although I have not been good at following his advice about diet. My LLMD tries very hard to encourage me to follow a better diet particularly low on carbohydrate and sugar two of my worst weaknesses. My third weakness dairy may well be the reason for my many years of sinus problems which are currently improving since reducing my dairy intake.

I came across a link into Dr Myhill’s website today thanks to Hedge http://www.tiredofme.com/
The first thing I read was about allergies and colicky babies, how I wish I had read this 30 years ago when I desperately tried to calm my colicky daughter. Food for thought as she spent her childhood with sinus problems which caused sleeping problems up to the age of 8 and now as an adult constant allergies.
http://www.drmyhill.co.uk/
There is much wisdom, we can all benefit from looking at Sarah Myhill’s website.

Below are extracts from Burrascano Guidelines http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf
found through www.ilads.org

‘If treatment can be continued long term, then a remarkable degree of recovery is possible. However, attention
must be paid to all treatment modalities for such a recovery- not only antibiotics, but rehab and exercise
programs, nutritional supplements, enforced rest, low carbohydrate, high fiber diets, attention to food
sensitivities, avoidance of stress, abstinence from caffeine and alcohol, and absolutely no
immunosuppressants, even local doses of steroids (intra-articular injections, for example)’.
‘INTESTINAL TRACT: An overgrowth of yeast here will ferment dietary sugars and starches, forming acids, gas,
alcohols and a variety of organic chemicals. Symptoms include gas, bloat, heartburn and/or pain in the
stomach area, and because of the organic chemicals, there can be headaches, dizziness, lightheadedness,
wooziness and post-meal fatigue. To clear intestinal yeast, first the tongue and mouth must be cleansed so
yeast does not reenter the system with every swallow. Next, since yeast germs feed on sugars and starches,
follow the low carbohydrate diet outlined below. Finally, to replenish the normal, beneficial microbes, eat PLAIN
yogurt daily, drink Kefir, 4 ounces daily, and/or take acidophilus, 2 capsules three times daily after meals.
YEAST CONTROL DIET- restricted carbohydrate regimen
UNRESTRICTED FOODS
All protein foods, such as meat, fish, fowl, cheese, eggs, dairy, tofu
RESTRICTED FOODS
FRUITS
Fruits may be a problem because they contain a large amount of sugars. However, if the fruit contains a lot of
fiber, this may make up for the sugars to some degree. Thus:
· Fruits are only allowed at the end of a meal, and never on an empty stomach
· Only high fiber fruits are allowed
· Only very small amounts!
EXAMPLES:
ALLOWED IN GENEROUS AMOUNTS
Grapefruit, lemons, limes, tomatoes, avocado
ALLOWED IN SMALL AMOUNTS ONLY! (The high fiber content in these hard, crunchy fruits partially
makes up for the carbohydrates)
Pears, apples, strawberries, cantaloupe, etc.
NOT ALLOWED (These soft fruits do not have enough fiber)
Oranges, watermelons, bananas, grapes, etc.
No fruit juices either!
VEGETABLES
Green vegetables and salads are O.K. Avoid or limit starchy vegetables (potato, rice, beans, etc.) and avoid
pasta.
STARCHES
None!! If it is made from flour- any kind of flour- it is not allowed. (No breads, cereals, cake, etc.)
SWEETENERS
NOT ALLOWED
No sugars at all, and no fructose or corn syrup
ALLOWED (if tolerated)
Stevia (safest), honey, and Splenda,
Aspartame (NutraSweet, Equal) may not be tolerated by some patients
Saccharin products are not recommended
DRINKS
ALLOWED
Water, seltzer, caffeine-free diet sodas, coffee and tea without sugar or caffeine, vegetable juices
NOT ALLOWED
Fruit juices, regular sodas, and any drinks sweetened with sugars or syrups
No Alcohol at all
OTHERS
Do not skip any meals. At least three regular meals daily are needed; a better option is to eat very small
portions but have between meal snacks to maintain blood sugar and insulin levels. Bedtime snacks, if taken,
must be totally carbohydrate free!’

Now I have recovered so well from my ME/CFS which turned out to be Lyme Disease I should really start to take my diet in hand and follow the advice of these two excellent doctors.

Below is a link into Rachel’s blog Raising awareness for ME/CFS in May 2010
http://meaware.wordpress.com/2010/02/15/blogging-for-mecfs-awareness-2010/

2 comments:

Hege Renate -16 February 2010 at 19:20
Thank you for visiting my blog.

I will follow your blog by RSS.

:-)
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Joanne16 February 2010 at 21:06
Hege
Hi Nice of you to join me.
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Lyme Life written in 2009

I started suffering with arthritis in mainly my large joints especially my knees 6 years ago. The symptoms varied and I remember saying that every joint was affected except my elbows to one doctor. I was told it would be hormonal and to take the usual supplements cod liver oil or glucosamine ( I would certainly recommend buying shares in the companies producing these supplements) They had no noticeable affect.

All my symptoms deteriorated significantly over a few weeks,4 years ago. Hips shoulders and knees being the worst and I started with muscle weakness in upper arms and upper legs. I had difficulty standing and walking across a room. I was unable to walk upstairs and my husband was making plans to convert to a downstairs bedroom. I had seen 5 doctors and 3 Rheumatologists and put on steroids for Poly Myalgia Rheumatica diagnosis. I had been diagnosed with Fibromyalgia and ME/CFS.

I have X rays and scans showing signs of osteoarthritis and Rheumatoid arthritis. ( later note.- the X rays done some years into treatment showed my hands completely normal no signs of inflammation or RA confirming how they felt - normal) I have been retired early from the Civil Service having lost my job not to mention my earning potential. My illness seemed to progress through my body not affecting the same joints left to right at the same time. I had bursitis in left hip, right hip, left elbow. I had synovial thickening in both wrists. At that time I could not lift and hold a magazine so lifting a kettle I could only do if a third full and with two hands. Each joint in my hands fingers feet and toes were affected. I had swallowing difficulties and many other symptoms. None of this describes the endless and awful pain whenever I moved or the tiredness but inability to get quality sleep.

Two years ago my GP gave me Amoxicilin for a sinus/throat/chest infection. All my arthritis symptoms improved. The course ended the symptoms deteriorated I started a second course the symptoms improved. The improvement was more significant than when I had started taking steroids. This led my GP to suspect Lyme Disease. I laughed because we do not travel abroad but she said they had had other cases in the surgery in the early stages of tick bite and Erythma Migrans rash. She said but you have not had a bite. I said oh yes I have I had two on my ankles with rashes, March 05 this was confirmed on her computer when I had seen a locum doctor. My worst symptoms were waking up feeling rigid and having to painfully flex every joint in my body before struggling to get up. The only other time I had experienced this was in May 2003 during a flu like illness like no other I had ever experienced. At that time I had a bite and similar rash on my right foot which lasted like the other rashes about four weeks. I had also consulted the surgery and it was dismissed as a virus. I walked our dog daily in the woods adjacent to our house where the deer roam, prime tick area. Thus started my very lengthy search about Lyme Disease leading me through Lyme Disease Action to a doctor who specialises in this illness. He confirmed my GP's suspicions. I never had a positive blood test but then they are antigen tests and there is much research that shows they are unreliable. In my case the year of steroids and many weeks antibiotics could have affected the results. So with a clinical diagnosis and following ILADS International Lyme and Associated Disease Society guidelines I continued on antibiotics for two years. Both my doctors continued to treat me despite of Health Protection Agency advising against long term antibiotics. I am now nearly 100% recovered I have no pain or muscle weakness. I can walk upstairs something I could not do for three and a half years. I can garden do house work and live a normal life. I still need to pace myself and with only a few months to 60 will not be looking to return to work. Life is such a joy. Sadly there is much controversy about Lyme Disease and doctors in UK are taught that it is so rare. Well where I live in Guildford I have been in contact with a dozen other people with it so perhaps not so rare as HPA would like us to believe. I am in touch with nearly 2000 other patients through a chat line Eurolyme most had been misdiagnosed with several other illnesses. Look at UK charity Lyme Disease Action if you want to read more about this illness. There are many MP's taking an interest in the problems surrounding diagnosis and treatment see above charity links into a recent meeting at the House of Commons.

Thank goodness there are some thinking doctors around who have courageously treated me against opposition and I have made such a miraculous recovery albeit rather a lengthy one. One day there will be many more people who are helped with their chronic illnesses when IDSA starts taking note of what our courageous LLMD’s are doing following ILADS Guidelines.

ME/CFS, Fibromyalgia, Poly Myalgia Rheumatica, Arthritis, Bell’s Palsy, MS,MN, ALS, Parkinson’s, Alzheimer’s, Heart Block, Stroke, Psychiatric, gastric problems the list is endless. Not all suffering from Lyme Borrelia but how many are even properly assessed for it.

UPDATE

UPDATE 10 January 2012