Sunday, 28 December 2014


POSTING UPDATE - A quick note to say that we are not meeting in Portcullis House after all - but going straight to the House of Commons.
Demetrios will write all the details later tonight - but briefly :
We go to entrance 8 (please see the map in the files of the group or download it from the Parliament web site))
which is known as the Cromwell Green Entrance; it's in St Margaret's Street.
We are being given a bigger room, Committee Room 14, for the whole of the meeting. It seats 170

There is to be a patient led Parliamentary Conference in the UK in January 2015 - details below

Lyme Disease Forum: 19th January, 2015

PART 1 - Atlee Room, Portcullis House: 1:00 p.m. to 2:00 p.m.
• Welcome speech from Rt. Hon. Simon Hughes MP 
• Words from Countess Marr 
• Meet and greet Opportunities

PART 2 - Committee Room 15: 2:00 p.m. to 5:00 p.m.
Attended by:Ruth Parry, Scientific Policy Manager, Department of Health (Micro-biologist, Virologist) 
Dr. Tim Brooks, Head of Rare and Imported Pathogens Laboratory, Public Health England, 
Amanda Semper, Scientific Program Manager, Rare and Imported Pathogens Laboratory, Public Health England (TBC).

Presentations by:
1. Dr. Armin Schwarzbach and Chris Moore 
2. Dr. Chris Newton and Dr. Beryl Beynon 
3. Peter and Denise Kemp Longman 
4. Dr. Mark Ashworth and Dr. Michael Wetzler 
5. Demetrios Loukas 
6. Q & A

Laptop and Projector will be provided in the Committee Room for presentations.
Final Q&A period will be for any discussion points that need raising following presentations.
People should leave questions for this final period rather than raising them while presentations are being given.

Regards, Michael Paul
Parliamentary Assistant 
Rt Hon Simon Hughes MP 
Minister of State for Justice and Civil Liberties 
MP for Bermondsey and Old Southwark 
House of Commons 

Those wishing to attend please email your name, email address and phone number contacts.To: 
Please title your email: LYME DISEASE CONFERENCE Attending
Proof of identification will need to be brought`along and presented at Portcullis House.
Please arrive at Portcullis House at least 30 minutes before the conference is scheduled to start, ie by 12.30pm.

A petition is to be sent to
Jane Ellison MP, Professor Dame Sally Davies and The Rt Hon Jeremy Hunt: 
'UK Lyme patients and concerned scientists and doctors have been preparing since May 2014 to meet with you: we hoped to inform you directly of our concerns about the dire state of diagnosis and treatment of Lyme Borreliosis and tick-borne diseases in Britain.'
'We cannot emphasise enough how much we need to talk with you and to explain directly what our concerns are. A panel of experts from Public Health England has been proposed to hear our presentations on your behalf.  Unfortunately, those same panel members have already heard similar presentations from our fellow patients and colleagues in several symposia and conferences over the last 2 to 3 years.  They are very welcome to attend but we also need fresh hearts and minds to appraise the overall situation, and in particular, a government minister from the Department of Health.'

Please go to the link to read the full details of the petition and if you live in the UK please add your voice and sign the petition.

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