Lifting The Veil II
at the Academy Of Nutritional Medicine on Sunday 15th November
Just a brief summary of this excellent conference - the presentations will shortly be available on the AONM website http://www.aonm.org and a DVD will eventually be available from that website.
Professor B.K. Puri
Discussed ECG
History - 1887 Augustus Waller first discovered the use of ECG at St Marys London carrying out the first ECG on a dog and then moved to humans. He also mapped the electrical field around the heart and produced a heart graph using PQRST.
Long QT Syndrome is found in 1 in 2500 of the population and can be hereditary.
Can cause rapid heart beat, seizures, respiratory arrest.
All SSRI's ( Selective serotonin reuptake inhibitors) can cause LQT interval.
All anti psychotic medication can cause LQT interval
Erythromycin orally can cause LQT interval a 300% higher risk of death from this than in patients taking Amoxycillin.
Environmental exposure to certain metals eg lead can increase risk of LQT interval.
Discussed Atrioventricular block
He discussed a paper in 1990 written by Dr Allen Steere on a case of AV block leading to death after an appendectomy - which said that Lyme Carditis must be considered especially in young patients with AV block.
He discussed a paper in 1990 written by Dr Allen Steere on a case of AV block leading to death after an appendectomy - which said that Lyme Carditis must be considered especially in young patients with AV block.
Discussed a further cardiac study didn't catch the authors name 20% had right induction delay but after 2 weeks treatment ECG returned to normal.
Dr Monro
Discussed at length food intolerances, allergies and sensitivities under various headings Rationale, Investigations and treatment.
Harboring toxins may need detox procedures
Can't ignore the fact a person who has Lyme had intolerances before infection.
Can have homeostasis working when healthy but can be dragged down by infection.
Need to lift whole thing up simultaneously to lift patient up.
Food sensitivities - historically we all know about this - various intolerances
Celiac has been associated with schizophrenia and a study found they improved when they couldn't get wheat during the war.
Studies have been done on wheat free and milk free.
In Celiac and in autism cases wheat free diet gave some improvements.
The Breakspear clinic hold a massive collection of books and papers ( not all found on Pub med)
She recommended a book Not all in the Mind by Richard Mackarness
She recommended a book Not all in the Mind by Richard Mackarness
Anaphylactic shock was first described in 1901 and is an affect of the Autonomic nervous system. It was recognised in 1940 as a histamine release.
Discussed oral tolerances, no mast cells under the tongue so can use that to introduce oral tolerances.
Low dose immunotherapy.
Started with hay fever introduced weaker dilutions and can be used as a vaccine.
discussed two pathways ANS and Lymphocytes.
Emphasized people with chronic infections have allergies and these must be addressed.
Quoted 1/3 of the population had migraine. 1/3 of the population had IBS
Quoted 1/3 of the population had migraine. 1/3 of the population had IBS
Dr Klinghardt
http://www.klinghardtacademy.com/
Started by giving a tribute to the work of Dr Jean Monro
He did his thesis on the Autonomic nervous system (ANS) and the immune system, his colleagues thought ANS outdated - it was the beginning of a career in ANS. In Germany growing up he became interested in homeopathy, acupuncture and ANS.
Moving to the US different legal systems only allowed to use his hands so adopted his methodology.
Talks about 3 components
1. Genetic and epigenetic
2. Environmental challenge
3. The immune response to toxins, microbes, parasites.
"The response of the host makes the disease" Lewis Thomas MD -NEJM 1972.
Treating chronic Illnesss he uses 4 principles
1. Basic physiology - exercise, diet, trauma, work and transgenerational physiologies, hormones, vitamins, osteopathy,EMR protection
2. Decreasing toxic body burden- metals,chemicals & Biotoxins from extra and intra cellular matrix, EMR protection.
3. Immune Modulation- up regulating blocked or underactive immune function & down regulating hyperactive ones
4. Decreasing microbial burden diagnosisn & treating parasites, mould, viruses,( HSV, EBV etc) bacteria eg Borrelia, bartonella, protozone ( Babesia, toxoplasmosa, omeba)
Stressed the importance of paleo diet and benefits of Japaneese knotweed for long term treatment to keep Lyme at bay. also a need for using antivirals.
Discussed
1. Toxicity
2. Unresolved psycho evolutionary & trans generation issues
3. EMR microwave, electricity & magnetic fields
4. Infections
5. PANDAS & PANS
6. HPU (HemoPyrrollactanUria)
7. CCSVI
8. Dental issues
9. ? Brain waves
10.Decreased regulatory neuropeptides & hormonal deficiencies
Says he believes it is a mistake to try to fix hormonal issues ie in Babesia - hormones can make more toxic and need to come later in treatment.
Illness & Epigenetics
psychological and physical trauma
In animal models epimutations followed 7 generations generally led to study families dying out.
We are now third generation exposed to microwave and glyphosate
Epimutations 1000x more significant than genetic mutations.
We do not have epigenetic testing yet.
Need to look at ways to help methylation.
Chlorella and chelation for heavy metals.
Aluminium particularly related with neuro toxins & pro inflammatory but no testing.
Tests that can help are
Low WBC
Elevated MCV
elevated fasting blood sugar 90-110
low alkaline phosphate
moderately elevated LDC
Low urine specific gravity
are often indicated in the sickest patients.
Artimisin helpful and mentions a Lyme cocktail found on his website (link above)
John Caudwell
Spoke briefly about the journey he and his family had been on for the last 6 weeks. He has quickly recognised the lack of help from NHS and acknowledged how caring the lyme community was, he expects to interview for Chief Executive next week for a new charity for Lyme whose aim will be to get NHS to take responsibility for this patient group. He has been moved by the numbers of tragic stories. Much of what he said can be read on his Facebook page.
Dr Sarah Myhill
Sometimes I am ashamed to be a doctor - the biggest problem is the medical profession. Driven by pharmaceutical drugs to treat symptoms- it is important to ask what is the mechanisms going wrong.
Fatigue we all have, energy demand outstrips energy delivery
Chronic fatigue - many have immunological symptoms.
ME also have inflammatory symptoms.
In CFS
1. Very poor stamina
2. delayed fatigue
are only two symptoms looked for.
Energy loss
Muscles - No stamina, weakness
brain - Foggy brain, poor energy delivered to brain. Having low mood or depression may be way of conserving energy such as in low seasonal defective disorder.
stress
eye - inability to read watch TV, photophobia- light intolerances
ear- noise intolerances
Immune system - activate immune system, such as in flu you
Intolerance heat & cold - requires energy.
Gut & Liver- eating toxic food puts greater demands on liver
Hormone synthesis - likely to be slow
Cardiac symptoms - extremely common Heart symptoms compound all other symptoms. POTS - autonomic problem but can be a symptom of lack of energy to the heart.
Symptoms of inflammation can be localised or generalised. She draws a great analogy to a car engine in respect of Mitachondria, diet, gut, lungs,heart circulation,Thyroid,Adrenal.
Need to pace energy but also mental energy. But refers to PACE as an oxymoron because if you get better with PACE therapy you do not have CFS.
Discusses various books she has written highlights importance of diet.
Modern diseases fueled by carbohydrate & sugar diets. Most important to follow stone age diet.
sleep - imperative
Circadian rhythm
Sunshine & light vit D anti inflammatory,
Avoid infections- acute infection is one thing but can switch on a chronic immune reaction.
(In generally ie flu or a cold she believes that symptoms of acute infection should not be suppressed by drugs, need to go to bed and rest, need to let immune system work).
Discussed tools to treat poor energy levels included CoQ10,Vit B3, magnesium, D ribose, vit B12 She says even if you can't get testing done this selection is very helpful and unlikely to do any harm.
Major source of toxins from fermenting gut. Alcohol intolerance is recognsied in ME patients uniformly.
Discussed thyroid function indicating problems with testing and the need to go on clinical symptoms. TSH is set high in UK and everyone has their own individual range.
Adrenal function - stress - mitochondria output
Detoxify- saunas can get rid of toxic load but not heavy metals.
Dr Schwartzbach
Dr Schwardtzbach has tested more than 1000 samples from the UK and astounded how many tests are positive.
He gave an overview of infections and viruses that it is important to consider testing for in chronic diseases such as ME, MS, Fibromyalgia, RA,Alzheimers, Parkinsons, Autism.
Quoted that 50% of people in Sweden have Lyme Disease.
It is a big problem to diagnose parasites only one lab that does that which is Fry labs in US.
Says CD57+ NK cells very important.
Learn from TB that it is reaction on T cells not B cells.
Only study on CD57 was one done by Stricker.
CD57 can be low in Chlamydia & Mycoplasma - need studies.
Elispot is test for T cells
very established, actual activity of T cells fighting against actual infections
sensitivity -84%
specificity -94%
Most doctors say it is unspecific everybody has it - but there is no argument to say this.
Patients not positive but have low CD57 if they are treated they improve and CD57 raises.
It uses the same bands that are used in the Western Blot.
antigen from B31 strain, OspA, Sensu stricto, Afzelii,garinii, + OspC native + DbpA? recombinant
The tests are CE certified - he does not produce the test he just uses them.
Tests support a clinical diagnosis
Doctors need to learn to make a clinical diagnosis it is not easy and no time to asses it needs specialists.
Immunoblot time will end in a year of two not because there is no Lyme.
Denmark don't use the Western blot they only use the ELISA based on only one study which was done by the person who owns the lab that does the tests.
Spot Technique
MicroArray
Seraspot
can quantify 60% in Chronic with 99% specificity
20%-30% Lyme positive in Autism - Bransfield
90% CFS Lyme positive
2014 - Pure Lyme dementia exists& has good outcomes in treated patients. Dementia patients should be tested.
Seems Koala bears can be treated for Chlamydia but not so humans.
Common symptoms of Chlamydia are cough, sinusitis and can cause all symptoms and illness as Lyme Borreliosis
Garth Nicolson - Mycoplasma
Can keep ticks in polythene bag in freezer/fridge? for testing
Elhrickia
Bartonella was found in 40% of ticks in Germany.
Showed a slide of Bartonella striae which are common.
Babesia very Important for blood transfusions services.
Ricketsia
EBV not found in ticks yet
Cytomegalovirus (CMV)
Herpes Simplex Virus linked with MS co factor CFS, Fibromyalgia
Coxsackie Virus nearly everyone in UK has IgA for CV
Most Fibromyalgia patients are Lyme positive.
Lyme found in Otzi died 50 million years ago.
oldest tick with Lyme found from 40 million years ago
Important to look for co infections too.
Autism 50% have chlamydia as well as 10-20% Borrelia but need to look for other infections
To treat viruses - barbour, artemisin, samento very difficult to eliminate - blocking mitochondria.
Dr Newton
Gave a brief update of a result of a visit to Porton Down in June. There will be a new initiative to try and raise funds for work on a UK direct testing method to find Borrelia this will be launched in a few days
FIGHT LYME NOW
Dr Alan MacDonald
presentation by Vimeo with question and answers by skype.
Review of Infectious Borrelia species Chronic Brain Infections and the Development of Alzheimer's Disease from Alan MacDonald on Vimeo.
Thank you Joanne!
ReplyDeleteBrilliant as ever Joanne. Thanks for doing this.
ReplyDeleteThank you for doing this so quickly Joanne. I've been busy with visiting family ever since the event and haven't had a chance to debrief myself yet. I'm sure this is going to be very useful in disentangling my written jottings! The phrase which stood out for me, just for its efficiency as a metaphor, was when Klinghardt referred to the (healthy) immune system as the "intelligent gardener". So elegant! (Assuming I understood what he meant!) Louise
ReplyDeletejoanne, thanks for showing a link on JOHN CAUDWELL'S FB page of UK'S conference recently held and what each had to say briefly.
ReplyDeleteglad you got to attend and hear dr. alan macdonald's recent video talk. ALL have been so good.
alan will be doing the DNA PROBE autopsy work on my late husband, jack, soon OR started his; don't know for sure with all the confernces held lately. my personal donation of $1,000 made earlier; never planned on it being used on my OWN HUSBAND'S DNA PROBE autopsy!!
looking forward to finding out SCIENTIFIC FACTS! did/didn't he have:
alzheimers,
lewy body dementia,
UNDIAGNOSED LYME disease, which IGENEX LAB, CALIF/USA showed he had positives but NOT CDC POSITIVE....so never treated.
he also had advanced parkinson's and kidneys had shut down for 8 months before he died from stage 4 CANCER of r. lung/liver areas TWO NIGHTS after his diagnosis!!
joanne, again, thanks for going and sharing your summary on JC FB page as many of us would have never found/read this otherwise.
hugs/prayers to us all on this LONG, detours, roads out destruction territories,
dec. 2, i'm having right knee replacement, waiting for alan macdonald to advise if he'd like to TEST synovial fluid, etc. with his dna probe.
bettyg, iowa/usa activist
47 yrs. chronic lyme
35 yrs. MISDIAGNOSED by 40-50 drs.
UNACCEPTABLE!
Thanks for all the comments - it is nice to get comments other than constant spam. It sometimes feels like posting in a vacuum but considering I get about 300 reads a day perhaps it is more useful than it would appear.
ReplyDeleteAs some of you know I use it for a useful resource for myself in finding information.
Betty I look forward to reading Dr MacDonalds results from your husbands autopsy, so kind of you to do this to help the Lyme movement.
I read today some of Dr MacDonald recent findings in seronegative case of MS from Norway - finding Borrelia by beacon probes. How many patients with MS are left without appropriate treatment because of poor antibody tests and poor spinal taps when in fact they actually have Borrelia and could be treated with antibiotics instead of immune suppressants.