Mis diagnosed as Fibromyalgia, ME/CFS, Musculoskeletal Disease,Poly Myalgia Rheumatica - significantly improved when treated for Lyme Disease. Perhaps more aptly described as Multi-Systemic Infectious Disease Syndrome - MSIDS.
Saturday 9 April 2011
LETS WORK WITH THE LYME DOCTORS AND LETS START CALLING THIS ILLNESS ANYTHING BUT CFS
Dr Judy Mikovits at the NIH State of Knowledge Workshop in 2011 on ME/CFS. She says XMRV is allowing all the other viruses (entero, herpes etc) to keep going,
i.e it's similar to the way HIV causes AIDS, which is anything up to 25 different infections in the end.
Then she also says let's work with the Lyme doctors and lets start calling this illness anything but CFS
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"Then she also says let's work with the Lyme doctors and lets start calling this illness anything but CFS."
ReplyDeleteAgreed! :)
An interesting sumary for those of us who have not yet had time to fully puruse the webcast
ReplyDeletehttp://callmeamazed.blogspot.com/2011/04/nih-workshop-on-mecfs-state-of.html
Hi Laurel Thinking of you at this exciting time and the many thousands of others.
ReplyDeleteHow can there be such denial in the face of so many sick patients?
That tipping point is taking too long to finally tip but must be pretty near now.