"Lessons learned from AIDS",
Dr. Conant at the recent ILADS conference 2010
"What the AIDS patient learned to advocate for was not compassion from the public, was not sympathy from the public - what they learned to advocate for was research dollars, research funds."
"Focus energies on getting money for research. Find out the etiology of this disease." (in this case he was speaking of Lyme Disease)
"Focus on research, not suffering."
"Don't trust the press." "The press is not your friend." - they are corrupt and have another agenda.
"Lessons learned from AIDS", Dr. Conant
"Congress is your last resource, not your first." "The federal government is not your friend." You first have to prove that something is there.
"Dont blame your adversaries" "Bring them (your adversaries) in, don't cut them out." Otherwise you will have to wait until they are dead - and that could be a long time.
“Develop coordinated activism" How do we best get funds to study this disease?
To read more visit The CFS Patient Advocate blog here