Tuesday, 5 February 2013


Reform the Infectious Disease Society of America Treatment Guidelines for Lyme Disease

Lyme disease is at epidemic levels, posing a significant threat to public health. Lyme can lead to chronic and debilitating effects if not properly treated. Lyme is leaving masses of people in progressive states of illness and financial ruin. The Infectious Diseases Society of America's treatment guidelines are to blame, they promote the idea that Lyme is a simple, rare illness that is easily cured with 30 days of antibiotics. This is not true. Insurance companies are denying payments for medications even when deemed medically necessary after 30 days. Doctors who treat Lyme patients are being investigated and prosecuted for not conforming to such guidelines. Please sign this petition to reform IDSA guidelines and allow doctors NOT Insurance companies, to decide what is medically necessary.

The above is a petition to the Obama administration which can be found here  

Please go to and sign this petition, everyone throughout the World has their treatment influenced by these outdated Lyme Disease Guidelines and so it is in all our interests to sign this petition. You can register and sign from outside US.
It must be signed before February 10th 2013. 


  1. Hi Joanne, I am sorry I did not see this petition in time and that not enough signatures were there to make it go. It is so sad and criminal really that this problem is still being ignored as a chronic disease. Insurance companies are very powerful. I hope you are well. Thank you for the kind words on my blog. Carol

  2. Hi Carol nice to hear from you - I am not sure what happened with this petition there have been many reports of the electronic process not working. I find it hard to believe any other reason because so often when the Lyme community rallies as in the recent fund raising for Dr Jones there is a tremendous response http://lymedisease.org/news/lyme-times/supporting-dr-jones.html
    As to me a recent ear infection has resulted in antibiotics again and once again some of my lingering Lyme like symptoms have all resolved - the ear infection however is not responding very well yet. I don't think we are ever properly done with Lyme it seems a question of knocking it back when we can and getting better quality of life which thankfully in general I have and been mostly without antibiotics for two years.

    How are you doing?