FOR ATTENTION OF UK LYME DISEASE PATIENTS
Dear Lyme patient
The lyme patients defence group is a group of people with lyme, who have had difficult or negative experiences of the advice from the Southampton reference lab, and its impact on their diagnosis and treatment for tick-borne infections.
We seek other people ( irrespective of who, or how, diagnosed ), who have also had a bad experience. Carers are welcome to contact us if patients are too sick to do so.
It is a group supported by a member of the House of Lords, who has recently taken action in support of lyme patients. At present it is a self-organised group that is independant of all clinics, doctors and lyme charities. Further action is planned.
All people wishing to join this group, will be confidential. No personal information on participants will be circulated, and names and identity will not be divulged either. Information about the group will not be posted online, for ethical and other reasons.
If you want to help in these efforts, please contact the co-ordinator. I will need to talk to you about your experience as a patient.
katrina - firstname.lastname@example.org 12th June 2011
Sorry I have just edited the above e mail hope it now works ok may have to copy and paste.