Institute of Medicine
A Workshop on the Critical Needs and Gaps in Understanding Prevention, Amelioration, and Resolution of Lyme and Other Tick-borne Diseases: the Short-Term and Long-Term Outcomes
Questions and answers at the end of day one about 72 in on the following videocast
I didn't catch his name but he says- I presented this to the Lyme Disease review panel of IDSA society in July 2009.
'I do a fair number of spinal taps in my practise and also save and freeze spinal fluid, serum and urine.
I had the opportunity to send 140 specimens of spinal fluid to Dattwyler's labs where he was working on osp A and osp C antigen capture.
Compared to standard assays for spinal fluid 2% were positive but using one or several of the research assays 61% were positive.
That research was funded by the CDC and was done by Dattwyler, Quo( not sure of spelling) and Shultzer but has never been published.'
He urges the Institute of Medicine to investigate further into these assays as it might enable use to diagnose more people with CNS Lyme than we are able to do presently.
How many patients with Neurological problems have been told they can't have Lyme Disease because these unreliable tests came back negative and have spent the rest of their lives with a Multiple Sclerosis, Parkinson's, or ALS diagnosis when infact it was seronegative Lyme Disease and adequate antibiotic treatment could have improved their health?