The above was published today in the Washington Post.ME/CFS patients are no longer invisible, no longer silent. From their beds and wheelchairs, many disabled patients worked together to place the first-ever ME/CFS ad in The Washington Post.
The recent studies show that more research funding is needed to prevent the next mother, father, or child from becoming chronically ill with this devastating disease.
Time for the US and UK governments to take the following actions:
Provide more funding for biomedical ME/CFS research;
Develop a national research and clinical network, as recommended by the federal Chronic Fatigue Syndrome Advisory Committee;
Provide funding for XMRV/MLV clinical research in order to sustain momentum;
Protect the blood supply and explicitly prevent ME/CFS patients from donating blood;
Adopt the Canadian Consensus Criteria for diagnosis and research of ME/CFS;
Bring the Centers for Disease Control website in line with the recommendations of leading researchers and practicing physicians in the field of ME/CFS.
The above from ME/CFS World Wide Alliance here
Make sure you watch the Videos What about ME on the right of the above link.
Further press release here
So much of what is happening with ME/CFS denial parallels a similar situation with Lyme Disease denial and there are many patients who are now being found infected with both Lyme Disease and XMRV.
