Lyme
disease: fatigue, paralysis, meningitis ... You may never be rid of
it
Posted
on 12-04-2015
English Translation by Google to highlight some salient points.
http://leplus.nouvelobs.com/contribution/1352040-maladie-de-lyme-fatigue-paralysie-meningite-on-ne-s-en-debarrasse-jamais.html
Christian Perronne,
Head of Infectious Diseases at the University Hospital Raymond
Poincare in Garches (Paris-Ouest-France).
Lyme disease is mainly
transmitted through tick bites
1st phase: a
red patch around the bite
2nd phase, which can be
insidious, the symptoms are multiple yet they often go unnoticed.
'In my consultations, I see sick people every
day, some are in absolutely dismal states. Some have a 20-year gap in
their lives, some have had to stop working, some have lost their
spouse and their work, some even commit suicide.
The disease is
not rare: the tests are bad'
'The
only thing experts have managed to agree upon is what should be done
in the primary phase: at least two weeks of antibiotics should be
prescribed. But the problem is that in 80% of cases it is not done,
doctors are simply not willing to give antibiotics for a tick
bite.'
'In the secondary and tertiary phases, the American and
French consensus recommends that patients be treated for three to
four weeks. If the illness persists, a second class of antibiotics
can be tried, but this will not heal not every patient.
After this
period, it is “terra incognita”: everyone does as s/he pleases'
'Medicine is not capable today of
properly treating this disease. The reasoning being : why should
money be spent on scientific research for an “imaginary or rare”
disease? Nobody is going to care.
A one-year waiting period for my
consultations
When the disease has become chronic, because of lack
of early diagnosis and treatment, 80% of patients relapse, and as a
result, doctors are even more incredulous. Some tell me that they
have "never seen any Lyme". My opinion is that they simply
have not recognized that one of their patients had Lyme! and they
have been treating him/her for something else. I personally have a
waiting period of one year for my consultations, it is utter madness
...
It is known that the bacteria keeps waking up from dormancy in
cycles. Once you are infected, in many cases, you will never get rid
of it. Some patients suffer from moderate forms but others are very
ill, and their whole lives can become a living hell. Some patients,
for example, can become bedridden after 10 years of illness.
In
the US, a vicious and brutal war has been taking place for decades.
It has been fueled by a handful of “experts” who refuse to
recognize Lyme in its chronic form.'
This was an excellent article go to the link for the full article
http://leplus.nouvelobs.com/contribution/1352040-maladie-de-lyme-fatigue-paralysie-meningite-on-ne-s-en-debarrasse-jamais.html
Lyme and associated tick-borne diseases: global challenges in the context of a public health threat Christian Perronne
Conclusion and Perspectives
The numerous complexities of Lyme disease make it an extremely difficult illness to fully comprehend. It remains a diagnostic challenge even for the best informed of clinicians. The lack of a gold standard for diagnosis renders the management of patients difficult and seriously hinders our ability to produce accurate statistics, especially as very similar syndromes could be due to other species of
Borrelia. In some patients suffering from syndromes of unclear origin, following tick bite, other microbial agents could also be playing a role. Lyme disease has now entered the political debate as shown by the amendment (Section 54.1-2963.2) voted in 2013 by the State of Virginia, USA, that compels physicians to inform their patients that the “current laboratory testing for Lyme disease can be problematic.” The fact that politicians are being called upon to rule on these matters should prompt scientists to regain control of the situation. Politicians should instead become aware of the necessity to fund research and facilitate the setting up of independent international working groups. Reliable testing is essential to investigate the many syndromes of unclear origin that may mimic many other medical disorders. Proper fundamental and clinical research is urgently needed as it would be the most cost effective way of ensuring that patients are accurately diagnosed and that the best therapeutic strategies are decided upon (
Stricker and Johnson, 2014). Development of new diagnostic methods is badly needed. New PCR methods and new genomic techniques, such as high throughput sequencing, could prove promising in identifying the complex mix of microbial agents that are probably involved (
Vayssier-Taussat et al., 2013;
Lee et al., 2014). Next generation sequencing allowed the identification of various bacteria from
Ixodes ricinus ticks in France:
Anaplasma phagocytophilum, Bartonella henselae, B. grahamii, Borrelia afzelii, B. garinii, B. burgdorferi, B. miyamotoi, Candidatus Neoerlichia mikurensis,
Ehrlichia canis, Rickettsia canadensis, R. felis, and
R. helvetica (
Vayssier-Taussat et al., 2013). These new techniques should be applied to human samples. Other variables, such as genetic, environmental, or auto-immune factors should also be studied. The name “Lyme disease” is too restrictive as it focuses and fuels the controversy. A new term should be agreed upon for these syndromes with possible infectious involvement, often following tick bites. Closer collaboration between epidemiologists, microbiologists, immunologists, geneticians, environmental scientists, veterinarians, entomologists, and clinicians is needed to identify the main agents that could be causing these occult infections and to determine strain pathogenicity. A new multidirectional approach is crucial in order to widen the field of research and to move forward.
